Day 3 at the childrens hospital

 I am missing my other kids. :(  I need to get home and spend time with them.  I did sneak away during Ronan's nap time today and went with Isaac and Jadzia to a birthday party.  But Inara especially is missing me greatly and feeling insecure.  Ronan might have his PICC line placed tomorrow. If this is the case I won't be able to leave but if everything is going ok I might slip away for a little while to spend time with my other kids so they know their mother hasn't abandoned them.  On Monday my in-laws are picking up the boys so my mom will only have the girls.  

Ronan woke up with his right eye pretty swollen.  His whole face has been swollen but this morning there was a noticeable difference his right and left eye.  As the day went on the swelling went down but the lid stayed red it resembled when he had the periorbital cellulitis.  

One of the valves in his IV came loose.  The good news was the IV site itself was fine but he had been leaking fluid for awhile.  This made his sugar drop to 60 but as soon as the IV was hooked back up his sugar returned to normal.  He was acting like he wasn't feeling very well and very tired all day.  He was also not eating well.  He was acting strangely enough I asked the nurse to check his sugar early a couple of times and it was normal.  He continued to act sluggish then after barely touching his dinner he had four bad diapers then started laying on his floor mat lethargic.

The nurse checked his sugar and it was 311.  The doctors weren't worried because they prefer it high rather than low at this point.  He got a surprise visit from Grandpa and he was pretty happy about that.  As soon as Grandpa left he started putting his hand in the back of his mouth and acting lethargic just like when his sugar is low but he had just been 311 so I decided to just watch him.  Two hours after the 311 blood sugar they checked him and he was 37.  The nurse checked him again to be sure and she got the same result.

They gave him some emergency meds and his sugar climbed back quickly.  He was then pretty happy the rest of the night.  Tomorrow he might get his PICC line and he will have a GI consult to figure out what they will do with his esophagus problem while he is in the hospital since he is due for another dilation Tuesday and he will not be out by then.  At this rate I don't know when he'll be out since being off the IV meds for a very short time made his sugar dip low.  It's all wait and see at this point.  I love my brave, beautiful boy.