Ronan had his endoscopy done Thursday September
29th. The surgeon showed me pictures afterward and I was shocked. Where his stomach and esophagus joined it
looked completely closed. I'm not sure
how anything was able to get down. The
surgeon told me he wasn't completely optimistic because he had dilated slightly
to try and prevent the wrap from coming undone.
His doctor thought he might need one more
dilation but said try and feed him some pureed foods once he was awake
enough. When we got back to the room he
began playing and the nurse sent up a food tray. On the tray was some pureed chicken, carrots
and applesauce. If only I'd known how
problematic the chicken would become I would have avoided it.
Ronan ate the food perfectly with no choking
incidences. His doctor was pleased and
said as long as things went well he'd be going home in the morning. On Friday morning I headed up to the hospital
early hoping I would be bringing Ronan back with me.
The nurse was just getting his discharge papers
ready when he had a huge blow out. I
changed him and the nurse said she had to get a sample apparently he had one the
night before and the doctor had requested testing if he had another one.
From there things got crazy. He had 15 explosively full diapers in an
hour At this point doctors were coming
in and out of the room looking at him.
His eyes looked sunk into his head and he was the angriest I've ever
seen him. Nothing I tried worked. We tried giving him pedialyte and within
minutes he would have another diaper.
A new IV was a must but he was bruised up
everywhere so they put it in his head.
He had to have arm restraints to prevent him from pulling it out. The
next day he was doing well again and was able to slowly work up to eating. His sample came back as a bacteria called
camplyobacter, a bacteria which is a type of food poisoning and most often comes from bad chicken.
The doctors told me after Ronan was in the safe
zone that he was really scaring them.
They had sent in several doctors because they were very worried about
him. His nurse told me in all the years
she's been working in the pediatric unit she'd never seen anything like it.
On Sunday Ronan was doing a lot better and it was
determined he could be sent home. He was
one happy boy when he arrived home. He
has been doing really well and is back to his laid back self.
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