5 in 5: Bring on the Blessings Blessings Round #2: First week of the Year

I've been relaxing this week as it is my last week before my classes start up again. I am taking Biology II, Chemistry, prealgebra and Voice lessons. The voice lessons are strictly for myself and I'm super nervous. I've always been nervous to sing around people I don't know very well. I sing with the kids and we have fun but I just don't sing around strangers because I'm really not sure I like my singing voice. We'll see what the teacher says hopefully she doesn't think I'm a lost cause. But basically I've determined to find at least one area I want to improve about myself each year and then do something about it. Last year it was drawing and this year singing. Hopefully I'll stamina the courage to make it to my first lesson.

Sunday night Isaac and I decided Xander needed time alone with both of us so we took him to a movie. I forgot my camera so there are no pictures but he had a great time. He rode a couple of kiddie rides and got a popcorn kid pack. He enjoyed being the center of attention.

The rest of the week has been mostly uneventful. I'm beyond excited for my level 2 ultrasound on Friday and nervous at the same time. This ultrasound is to specifically look for problems with the baby. So far everything is looking good and I'm trying not to focus on negative things simply that I get to see my baby and get some neat 3D pictures.

Tonight I was getting ready to give Ronan a bath and when I took his pjs off I noticed he had blood seeping from the button next to his pegs-tube. Also the skin around the button was bulging and super red. The button has to stay in for another three to four weeks. I called his GI doctor and he wants to see him first thing in the morning. He said once he sees Ronan he will determine then what he needs to do about it. I'm hoping it's an easy fix and not more hospital time. If he has to have a procedure he will have to stay in the hospital 48 hours off all IV fluids with no sugar lows to go home. His sugar has been all over the place with one day even in the 400s the entire day.

His lows are getting harder to bring up as well. Sometimes it takes me over an hour to get his level above 50. He was scheduled to go to the metabolic clinic next week and they called me today to tell me they were rescheduling his appointment to May 10th. I was shocked. Why would you move a child's appointment from January 12th to May 10th especially when all his doctors here wanted him in right away. The lady told me that they had him placed in the wrong clinic and that he was supposed to be seen by regular genetics not metabolic.

I argued for a little while with her and finally discovered that the hospital had never sent in the proper paperwork. I frantically searched for the hospital pediatric floor number but couldn't find it even on the internet. The lady called me back and insisted the only paperwork she had on Ronan was from when he was in the NICU and about his Down Syndrome.

The receptionist told me she would call me back and try to find out what was going on. I waited a few hours but didn't hear back. I decided to take things in my own hands and called his pediatrician. One more reason I think she is one of the best pediatricians in the world. she always makes Ronan a priority and gets him what he needs. She's fought restrictions and filled out endless paperwork just to make sure Ronan is cared for and she came through again.

I told her what was going on and that they were switching his appointment from January 12th to May 10th. She said "We won't let that happen. Who do I need to contact?" Within 15 minutes of me calling her she had all the paperwork the hospital was supposed to send completed and sent to the metabolic clinic. She called me back to let me know everything was in order. I'm very grateful for the work she does for my kids.

On to lighter things. Jadzia desires to be one thing when she grows up and that is a princess. She believes this to be truly attainable and it's all about the magic of childhood. She was wearing her crown and my Dad says "Hello, Princess." And she smiled really big at him and said "No I'm her majesty."