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Tuesday, January 10, 2012

Here we go again

 Ronan's Endocrinologist called me yesterday morning to let me know she wanted him back in the hospital.  When she had seen him on Friday she had taken is ammonia level and it was normal and this means he does not have HIHA because with that ammonia is consistently high and his has only been once.  This leaves the dumping syndrome.
 I'm not convinced.  Protein does make Ronan's sugar go low but sugar never does.  I know this because if we give him fruit and juice he stays high and feeling good.  If we give him pediasure, yogurt or meat he goes low within two hours and is miserable.  I'm not sure the doctor believes me and is putting him back on a high protein diet. The last time he had a high protein diet he had two seizures within hours of switching him to high protein.  But since they are convinced this is dumping syndrome they are convinced protein doesn't hurt him. This is because with dumping syndrome it is sugar that makes a person crash.  I guess we'll see who's right.
 They have also taken Ronan off the medicine he was on to keep his sugar up.  He will be here at least a week and his doctor says we're starting from square one.  Also if this is dumping syndrome then in a few months he should no longer go hypoglycemic.  This is because dumping syndrome is a complication of the fundoplication that resolves itself within a few months of the surgery.  

On to the other kiddos.  Jadzia still really wants to be a ballerina.  Few days go by when she does not put on a tutu at some point. 

And of course when she's not a ballerina she's a princess.

Inara has recently become insistent on enjoying popcorn with the big kids.  I'm still not big on giving her popcorn as it can be a choking hazard for little kids.  Here she is with her special bowl.  Grandma broke up the popcorn and made sure it had all soft pieces.  She was happy to feel like one of the big kids.



Ronan's big brothers are his best friends.  He follows them around and will just sit and watch them play.  He has the typical little brother annoyance when he knocks down their lego towers for the tenth time.  He doesn't understand why they don't find it as funny as he does.  after all his therapists worked for weeks trying to get him to knock down a block tower.  But when it comes down to it his brothers love their tower destroying little brother.  I know they will always watch out for Ronan. 


Xander has some exciting news. He finished his entire kindergarten math book half way through the year.  He is a little math whiz and grasps the concepts pretty quick.  Since he has finished his math book I am ordering him the first grade one.  Maybe that will be a little more challenging for him.  Now if he would just take an interest in letters we would be set.
As always here are the random pictures of the week so far.










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