Ronan Update.

It's been a while since I've posted a blog update and I believe the last time was when Ronan first got put in the hospital again.  He is still in there and I don't see him getting out in the near future.  This is because they flipped everything around they changed his low protein diet to a high protein one.  They stopped his medication.  I told them that pediasure makes his sugar worse but if he has Dumping Syndrome it should help so they bumped him from four ounces three times a day of pediasure to eight ounces four times a day.




They took him off his juices, fruits and vegetables and put him back on all animals products like meat, eggs, and yogurt.  I told them this would make him worse but they insisted on trying. And I figured well let them see for themselves.  When Ronan was put in the hospital he was having lows once in the evening and some days not at all.  I was very strict with his protein intake.  Now that he is back on the high protein diet he is having 3-4 lows a day.  He is having them in the middle of the night something he never ever had here at home not even once. The middle of the night lows are because they are giving him a bed time snack of eight ounces of pediasure (to help his sugar).

They have the data from his home meter.  They know he was having them maybe once a day with me and even though he is having them 3-4 times a day on their diet and med change they refuse to believe me it is the pediasure.  His Endocrinologist returns Tuesday and I'm going to talk with her and tell he exactly how I feel about how much worse this is making him and seeing what she says.  Isaac and I are going to be praying about how to handle this.  Isaac thinks we'll wait another week and see if they will change things but if they continue down this path and Ronan continues to get worse we are going to have to seriously think about the next step we need to take. 


I think I'm going to call his pediatrician as well and get her input.  She has never steered me wrong in the past and I trust her judgement.  I have to look out for Ronan and that is my first priority.  I'm going to try and get them to put him back on a low protein diet so they can see for themselves and maybe then head in the right direction but I'm just his mom so what do I know?