Home after 3 Weeks.

  
Ronan is home!  He was in for exactly three weeks.  Now the after appointments begin and I have a full day booked tomorrow with back to back appointments.  I have to take Jadzia to her speech therapy then the lady from home health is coming over to access Ronan and make sure I understand all his new equipment then I have to make arrangements for his new formula and after that I have to get things taken care of at the pharmacy and pick up some more supplies for him.  My day will then finish up with Chemistry class.  While that might not sound like much it entails enough to take the entire day.

Dancing!

I also need to set up half a dozen appointments with all his specialists.  Ronan now has a feeding pump due to the fact he has to have a continuous night feed.  We seem to have our own little hospital room set-up at home now.  He has his pulse-ox and oxygen, his nebulizer, IV pole and feeding pump, as well as two forms of rescue steroids and glucagon shot.  I'm starting to feel more like a nurse with each passing day.  

 The good news is though Ronan is home and I'll learn whatever equipment I have to to keep him at home.  He was beaming when he walked in the door and saw his sisters and Xander.   I heard Landon was excited Ronan was coming home and will be glad to see his little brother once he gets back from Grandma's.

Ronan and Grandma.

There were a couple of cute things from the hospital and both of which I did not get pictures of.  The first one involved Isaac, Ronan and the toy car Ronan likes to sit in. I had left the room for a minute to ask the nurses a question.  As I came back into the room I heard Ronan squealing with delight.  Isaac was zooming Ronan around in his plastic car and was even adding race car sounds to the mix.  Ronan was laughing and clapping and he occasionally signed "more".

 The other thing was Ronan made a friend.  He became buddies with another little boy (who also has Down Syndrome and was in the hospital)  the little boy hugged Ronan right away but Ronan wasn't too sure about him at first.  Before too long they were pals and playing together.

I think in a couple of weeks things should settle down and hopefully we can settle into a routine.  Hopefully frequent hospital visits are behind us and the trip to Philadelphia is no longer a possibility.