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Wednesday, January 25, 2012

Lost tooth and lego buildings


It has been about a week since I last posted.  Ronan is in the hospital still and tomorrow marks day 17.  This is his longest hospital stay to date minus the NICU.  He is doing better though and they have him on a new medication that seems to be working really well.  He has only had one low of 54 since Friday when they started him on it. I am hopeful that this might be the answer.  

 Xander went up to see Ronan again today.  I plan on taking Landon tomorrow and Jadzia on Friday.  Ronan was very glad to see his brother.  Ronan's Early Access team came by the house this morning to meet with me about goals for Ronan.  His team consists of a Speech therapist, occupational therapist, Hearing teacher, nurse and then the director for Early Access came along too.  He used to have a Physical therapist with their group but once a child starts walking they no longer receive PT through early intervention.  He still has his private PT.


In May Ronan will turn three and will then be transitioned from the program as it is birth to three.  I will miss his team as they have followed him since he was born.  They are setting up a time for Isaac and I to tour the preschool we might send him to in the Fall.  I'm thinking preschool might be good for him to socialize and maybe work on communication skills since he still does not speak.  He only signs.  The classrooms are smaller sized and they are equipped to handle special medical needs and also have therapists work with the children.
Ronan has been spending his days sitting in his tiny toy tote and hanging onto the duck blanket the hospital gave him.  He has also been enjoying the respiratory tube that the childlife specialist found especially for him.  When I told her that Ronan's favorite toy ever was accordion tubes she set out to find something comparable and respiratory tubing was what she came up with.

Landon lost his third tooth.  His bottom right next to the two centers and the one on the left is loose.  I didn't have any change the night his tooth fell out so I had to give him a piece of paper with  how much the tooth fairy direct deposited into our bank account.  He was ok with this idea.



Xander is still my main lego builder.  He can construct just about anything with legos.  I knew he was going to be a good lego engineer when he was two because he built an extremely elaborate helicopter.  It was several feet long and anyone looking at would instantly be able to tell it was a helicopter.  I was astonished how well his two year old mind had envisioned and created a perfect looking lego helicopter especially on such a large scale.  His current project is a dollhouse motor home.  He has been working on this one for a couple of days and he says he still has some work to do on it.  




Jadzia has been continuing with her speech therapy and making a lot of improvement.  She also misses Ronan.  She woke up the other morning and inquired where Ronan was.  When she was told he was still in the hospital she let out a huge sigh and fell to the ground in frustration.  With arms crossed she exclaimed "Still!!!"  Those had been my thoughts exactly.




I'm going to try and potty train Inara once Ronan is out of the hospital.  I started back in December and she was doing really well.  Then Ronan ended up back in the hospital again and I put it on hold. Now she tells me every time she goes in her diaper so I really need to get things going again but I'm going to wait until Ronan is out so I can give her my full attention.




And here are the random pics.















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